Thursday, September 3, 2009


Well here is a little update... not necessarily great news but news none the less. I went to the doctor yesterday and found out that my Prolactin level which is supposed to be around 100 while nursing is over 700!!! So I have an MRI scheduled for next Tuesday to check for a Prolactinoma (usually benign tumor on the pituitary gland). This doesn't really scare me to much because we have been down this road before..... when we were doing fertility and my prolactin level was supposed to be non-existent and it was 102 and there was NO tumor at all much to everyone's surprise. This is the hormone by the way that produces milk.... hence my Mastitis problem. Of course for 48 hours after the MRI I can't feed him so it is a good thing that I have a freezer full of milk!
Best case scenario (with no tumor) I can nurse while being CLOSELY monitored for 6 months before they require me to be on medication. (Problem being if the level stays that high for too long it can actually cause a tumor) If I have a tumor more than a cm I have to be done IMMEDIATELY and anywhere in between they will monitor me up to 3 months. In all reality the nursing isn't that big of a deal since I have had two babies on formula that are JUST FINE! I just, in spite of all the problems, enjoy my nursing time. The only reason I am having such an emotional time with everything is (well main reason is my hormones are ALL out of whack) because I am SO VERY TIRED of having to go to the doctor all the time and be monitored. However I am ready to be better again so I know it is all worth it. I have to also go see an Endocrinologist next week.
The other bit of news is that we need to see a Pediatric Neurologist for Keaton. I took him in with me to check his ears (apparently an ear infection can cause Bell's Palsy) but they looked good. So our next step is an appointment with the Neurologist on the 15th to see what he has to say. I really am not to worried about the diagnosis because we are seeing some improvement but I am excited to see if there is anything we can do to prevent this from happening again. I am however, freaked out about what tests they will have to do to my little boy. From a Mommy stand point that just about puts me over the edge. And again just ONE more thing for my mind to worry about!
We are just taking one day at a time and we are going to escape this weekend to have a FUN time in New Meadows at my grandparents house to think about NONE of this. Just enjoy the days with no worries before we have to face this next week.


Lenaya said...

Oh, I'm so very sorry. You really don't need any of this. I'm willing you a lot of strength and courage.

Mike, Amanda, Dane, and Nora said...

Wishing you lots of luck- we'll keep our fingers crossed!

Becky Gonce said...

OH, my!!! And scary what they might do to Keaton... Carson had an undecended testicle removed at 11 months and that was hard, but he didn't remember anything and wasn't scared of Doctors at the time! We'll be thinking of you!

Mama Moe said...

We're thinking of you all!